He recently switched to Neocate Junior formula (for toddlers) and he has actually started taking some of that milk by mouth! I sat with tears of joy rolling down my face. Today Andrew took half of his bottle! I'm so so happy that he's finally wanting to take some by mouth now.
He just switched his physical therapist out and his new one came today. I have to admit, that she was awesome with him and she pegged every trouble area and even pointed out a few things I haven't really noticed before. I feel like we're heading in a great direction there. He's started pulling up to stand, but still needs support once he gets there. She notices that he's kind of favoring the right side a little bit. That's the side his stroke effected, so maybe that wont be an issue. Nothing terrible, he just likes to put his body weight to the left side.
In the hematology world, his blood clot in his left leg is gone!! We are still using twice daily injections for blood thinners, but we hope to switch him to a pill soon with a little time and weight gain!
On another note, Andrew and Courtney have become like best of friends. It's really too cute to watch. He loves when she plays and talks to him. He's currently got her laying at his feet while he twists his toes through her hair. They crack me up.
We are down to 3 months between cardiology visits now! WOW!! It still feels so weird not to go weekly. My sweet boy has managed to stay out of the hospital since march, so I'm stoked he's finally heading in the right direction! Although we know we can't get too excited, because HLHS is an ugly monster sometimes. ;( We take each good day as it comes, and pray through the bad.
That's all for now!