http://www.amazon.com/Hypoplastic-Left-Heart-Syndrome-Handbook/dp/0965250865/ref=sr_1_fkmr0_3?s=books&ie=UTF8&qid=1396323132&sr=1-3-fkmr0&keywords=hypoplastic+left+heart+syndrome+parents+guide
Baby Hearts Press' first and best known book is Hypoplastic Left Heart Syndrome: A Handbook for Parents. This is the book that Anna wished would have been available when Alexander was diagnosed with HLHS. It includes chapters on normal heart anatomy and common heart defects associated with HLHS, explanations of the surgical options, commonly used medications and drugs, the availability of social services and more.
It can also be found on:
http://www.babyheartspress.com/book_hlhs.html
Baby Hearts Press' first and best known book is Hypoplastic Left Heart Syndrome: A Handbook for Parents. This is the book that Anna wished would have been available when Alexander was diagnosed with HLHS. It includes chapters on normal heart anatomy and common heart defects associated with HLHS, explanations of the surgical options, commonly used medications and drugs, the availability of social services and more.
It can also be found on:
http://www.babyheartspress.com/book_hlhs.html