He's actually done fairly well since surgery. No real surprises. just the common concerns after such a major surgery. His swelling is down a ton and they plan on closing him at some point tomorrow. Then weaning meds and the ventilator (which I can't wait see go!) He HATES the ventilator. :(
We came in this mornjng, his swelling was down and they said they completely stopped one of his meds (dopamine) and I was happy because that's progress, but shortly after arriving and seeing he was awake awake and responding to everything my mood quickly changed. I started asking Shaun if he was supposed to be this alert and of course we expressed our concerns right away with his nurse and she said oh nooooo. He's too awake. So she gave him a round of medicine and he just sat wide eyed looking into my eyes and squeezing my finger for the longest until he finally started drifting back to sleep. when he's squirmy and red faced we knew he was hurting. :( This killed me today. So I stayed out the rest of the day (I'm already weepy anyway) and let him rest. Shaun said he was good this evening and sleeping away, so that made me feel better.
Then the girls came out to visit us while Nonny and Poppy visited brother. It was so good seeing them after a week. Again I've been a crybaby and have missed them so much. That's been one of the hardest parts to all of this other than the obvious is having to leave them behind and not able to answer "When are you coming back?" Hugs goodbye at the end of the day are even harder but I am very thankful I got to spend what time I did with them today. We took pictures and played in the butterfly garden and bought them slurpees and brought them back to the Ronald McDonald house to play. Made life feel "normal" again for a little bit. I can't wait to get back home with all my babies under one roof. I've missed them. Not being able to be with Andrew or my girls this past week has KILLED me. I'm sitting idle and that's something any mommy, of now 4, never does. Not to mention the hospital food is way to expensive and tastes horrible! haha I miss cooking! :) I can't wait until home is in view, but for now Andrew needs time to heal and we have all the time he needs.
There is so much love, prayers, and support coming in that we don't know where to start and apologize if we have missed anyone. We are beyond blessed and grateful for everyone that has been a part of Team Andrew or stood behind us through all of this. it's definitely been the hardest thing we've ever had to face in life, but have seen so many here who is way worse off then our son is. CHOA kids are some tough kids! So be thankful for even the darkest points in life or all that you have now because there is someone out there who has it worse than uou. so pray for all and always be thankful no matter the situation. ♡