We have not really had the chance to update since our last blog back in September. LOTS of hospitalizations and procedures and his second open heart surgery in there. Flu season has been rough on our little buddy. He's had two emergency caths for narrowing of the aorta and then a stint in his shunt that was narrowing and rhinovirus. We came back December 8, 2014 for his second open heart procedure, the Glenn. We were finally discharged December 20th and life flighted back here January 9th. This hospital stay has changed our lives completely because what we thought was just the common tummy bug brought us into where we are. God's blessing in disguise.
January 8th, at our daughters 6th birthday party we saw that Andrew has started throwing up a lot more and started running a fever (101.2) Of course we called Sibley Heart Center and notified of more than two vomiting episodes and fever over 100.5. Since our youngest had a tummy bug they thought there was no need to come in and to call and update the next day, or go in to the pediatrician if it got worse. The next morning I woke up to Andrew crying constantly, modeled and labored breathing, and grey all over. His heart rate was 199+ and he was losing more fluids then I could keep in him. I ran him on enfalyte all night versus formula and held his lasix due to fluid loss. Little did I know this really maintained his little body enough to barely get him med flighted in and to CHOA. Shortly after arriving his body started shutting down on him because his heart was giving out. He was in severe heart failure and his kidney and liver was starting to shut down on him. He was intubated because he couldn't maintain oxygen levels and we waited several hours with a grim outlook that night upon arrival. Our little buddy pulled through and is now "stable" but has a very sick heart. There was so much damage to his heart that he is being evaluated and actively listed for transplant once the transplant team regroups in the next day or two. They told us his echo looked very bad from before and that there wasn't much room for his heart to get much worse. It was very enlarged and the muscle and tissues had grown to be really weak. His heart defect was the culprit. Him getting so sick was God getting our son here for doctors to realize his heart was giving out.
After running many tests they also found out he had rhinovirus, e Coli in his lungs, he was septic, and severely dehydrated with no reserves left. God performed a miracle and left Andrew here with us to tell his story and show that God still hears our prayers. He is almost over the illnesses we came in with almost a week ago. They said his lungs actually looked really really good in his x-ray this morning.
January 8th, at our daughters 6th birthday party we saw that Andrew has started throwing up a lot more and started running a fever (101.2) Of course we called Sibley Heart Center and notified of more than two vomiting episodes and fever over 100.5. Since our youngest had a tummy bug they thought there was no need to come in and to call and update the next day, or go in to the pediatrician if it got worse. The next morning I woke up to Andrew crying constantly, modeled and labored breathing, and grey all over. His heart rate was 199+ and he was losing more fluids then I could keep in him. I ran him on enfalyte all night versus formula and held his lasix due to fluid loss. Little did I know this really maintained his little body enough to barely get him med flighted in and to CHOA. Shortly after arriving his body started shutting down on him because his heart was giving out. He was in severe heart failure and his kidney and liver was starting to shut down on him. He was intubated because he couldn't maintain oxygen levels and we waited several hours with a grim outlook that night upon arrival. Our little buddy pulled through and is now "stable" but has a very sick heart. There was so much damage to his heart that he is being evaluated and actively listed for transplant once the transplant team regroups in the next day or two. They told us his echo looked very bad from before and that there wasn't much room for his heart to get much worse. It was very enlarged and the muscle and tissues had grown to be really weak. His heart defect was the culprit. Him getting so sick was God getting our son here for doctors to realize his heart was giving out.
After running many tests they also found out he had rhinovirus, e Coli in his lungs, he was septic, and severely dehydrated with no reserves left. God performed a miracle and left Andrew here with us to tell his story and show that God still hears our prayers. He is almost over the illnesses we came in with almost a week ago. They said his lungs actually looked really really good in his x-ray this morning.